Category: Uncategorized

Staying Strong?

Last week I got some bad news about Faith. She failed a test that is critically important when looking at the recovery of her disease. When the doctor from Cincinnati called to explain it to me, I felt like someone sucked all the air out of my lungs. This entire time we had been dealing with this, I had aways thought that someday Faith … Read More Staying Strong?

this is not normal…

In April Faith had an NG tube placed in her nose for tube feeds. Because her digestive system doesn’t work, and hasn’t worked ever in her five years she doesn’t eat nearly what a child her age should be eating. The solution to this tube feeds. She has an IV pole at home and she wears a backpack when she goes out of the … Read More this is not normal…

are we there yet?

If you ever have the opportunity to walk around a children’s hospital and just observe whats happening around you, I think it’s a great idea. It does one thing for certain, it puts life into perspective. It makes you realize what you have to be thankful for and just how precious life is. Listen to the conversations the parents are having, they’re talking about … Read More are we there yet?

We’re talking about poop? Seriously??

We take lots of things in life for granted, all of us do, well most of us. Things like having a car, having a job, having money in the bank, having food on the table, but most of us are aware of the fact that we take these things for granted. There is one thing that I can guarantee that everyone takes for granted, … Read More We’re talking about poop? Seriously??

I think I can…

Everyday, I tell someone who I’m working on a blog. Yeah..seems funny, not at all my style…but necessary to update people of Faith status. Well, everyday has turned into months…Some shrink out there would say something like I’m avoiding talking about it because it’s too painful..very true. I’ve realized whats worse is that I am no longer connected with my people because of this…its been two god awful … Read More I think I can…