Faith just turned seven. I actually can‘t believe she‘s seven. It seemed she was just turning four. I think the last few years have been so tough that they seemed to go by in such a blur. On my birthday, as I was blowing a candle out on a dessert she made me she asked me what I was going to wish for. I‘m not much of a wishing person anymore so I told her I wasn‘t sure. I asked, what are you going to wish for when you blow out your candles? Her response, has left me searching for something I can‘t seem to find. Something that makes me feel as if I am close to crazy. Something that makes me feel lost.
She says to me, I’m not wishing that I didn’t have all these medical problems, god made me this way he must have a really good reason. That night, I was inspired. I started to think about everything she has been though. Everything she is still going though and I was in awe that she could have such a strong faith that she feels that this is all happening to her for a reason. That night it made me feel warm. I felt like god had reached down and held her up, to say something so full of such unwavering faith.
Since that night, my feelings have been different. Since that night, I’ve been searching for gods reason why. Living with a child with a chronic illness is something that will test your faith in everything you come into contact with. It challenges everything you do. It makes you reassess everything that means anything to you. And above all else it challenges your faith in god, and the ability to understand how suffering and child could go hand and hand.
What I am starting to realize is we don’t get to know why. For some reason, the why isn’t something we get to understand. I remember after my dad died, so many people would say there was a reason for everything. It infuriated me. Yet, as I look at my imperfect little Faith I think there has to be.
So for now, I say she is here to add Faith to the lives of others. That when you look at a child that suffers the way she does but believes with every thought in her heart that she was made this way for a reason, and that god has something planned for her how can you lose faith over little things? She has a plan. She wants to make the lives of other kids like her better, she wants to teach them about being brave and having faith. She says she’s going to make kids everywhere realize what they are capable of doing even if they’re sick. She’s seven. And she has found this faith in the very difficult life she’s lived.
As for me, I don’t know how. If I was able to put aside the worry of keeping her healthy, if I could escape the fear of what is to come, If I could find the answer to how to be the mom of a little girl who’s special beyond her knowledge, then maybe she won’t catch on to my doubt. Because, when its 4am and she’s screaming and crying that she’s in pain, and nothing is making her feel better its really impossibly hard to think there’s a reason for all of this.
Yet, at 4am when she is screaming and crying I am usually down on my knees praying that whatever it is that is making her hurt goes away. I’m asking for strength to get though the night, and I’m asking for guidance to make the right decisions. And I am begging that she doesn’t catch a glimpse of my weakness, because I am the one that’s feeling lost, she knows exactly where she is. She’s just waiting. Waiting to understand gods plan, and his really good reason for all of this.